I started this journey last September and hoped to have my surgery in February, but I ended up with a mid-April date. I had ever thing ready-work leave, etc. I was mentally there. I've been sick since November, off and on, with some respiratory thing, and got slammed with it again the first part of March. I was sure it would be gone in time. Nope, anethesia and my pcp wouldn't clear me. Ok, off the schedule for April 18th. Reset for June 7th. Seems like plenty of time, right??!! Well I've had several tests, 5 weeks of steriods, and lots of other meds - and I'm not much better. I was just told today my surgeon needs clearances by next Wednesday. It's looking like my date is going to be moved again. We'll that did it - the tears started. I rarely cry. I'm sick 1) of being sick with this unbelievable cough and wheezing and 2)being in some weird holding pattern re my life. When will I be out on leave?yep, I don't know. Will I be able to be drive kids during x period of time?I don't know.. you get the idea. Add to that while I'm a fairly laid back person I also HAVE to be in control. (It's weird I know, but it works). I want to move on but I can't and this gray zone is also a killer on drive and motivation.i can't exercise (walking alone irritates the cough ) and while I should be doing well with my eating, my current victory is just not gaining weight on the steriods! ! 40mg a prednisone a day is also pushing my sanity in that it affects my sleep, body temp etc. . We'll it's looking like someone else is going to take my place on the bench on June 7th... I wonder if I'll get there. I sure hope it's this year since I've already paid out my deductible!! (Yes even that was met by February given my plans!! ) well for those of you who made it this far - thanks for indulging my rant!!

It's concerning that they can't get your respiratory problems treated. What is it that they think is the issue?

One part is an autoimmune deal, but it should have resolved with the steriods already. I think I've stumped them.

@@Believe16 I'm assuming they've determined it's not bacterial?? I hope it resolves soon so you can move ahead with your surgery.

I know exactly how you feel. I started in February 2015 and wanted to get surgery last year as after an auto accident and hysterectomy I had met my deductible. A high WBC sidelined me. I still don't know if my enlarged lymph nodes in my tummy are cancer infection or sclerosis mesenteritis. But finally got a normal WBC and had surgery this year I. February. Not ideal, and I cried a lot over the delay. Spent a lot of time getting doctors to conference with each other- but now it is behind me. I hope for a timely resolution to your situation but I wanted you to know others have had the same frustration.

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@@Believe16 I'm assuming they've determined it's not bacterial?? I hope it resolves soon so you can move ahead with your surgery.

They're trying their 2nd culture to see what they can learn. 1st one didn't show anything.

I know exactly how you feel. I started in February 2015 and wanted to get surgery last year as after an auto accident and hysterectomy I had met my deductible. A high WBC sidelined me. I still don't know if my enlarged lymph nodes in my tummy are cancer infection or sclerosis mesenteritis. But finally got a normal WBC and had surgery this year I. February. Not ideal, and I cried a lot over the delay. Spent a lot of time getting doctors to conference with each other- but now it is behind me. I hope for a timely resolution to your situation but I wanted you to know others have had the same frustration.

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Thank you. It does help to hear others have been in a similar situation and eventually got there. I hope you're doing well now that you've had your surgery!!

I know exactly how you feel. I started in February 2015 and wanted to get surgery last year as after an auto accident and hysterectomy I had met my deductible. A high WBC sidelined me. I still don't know if my enlarged lymph nodes in my tummy are cancer infection or sclerosis mesenteritis. But finally got a normal WBC and had surgery this year I. February. Not ideal, and I cried a lot over the delay. Spent a lot of time getting doctors to conference with each other- but now it is behind me. I hope for a timely resolution to your situation but I wanted you to know others have had the same frustration.

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Thank you. It does help to hear others have been in a similar situation and eventually got there. I hope you're doing well now that you've had your surgery!!

Thank you, I think I am? symptoms are down. I'll have a repeat of cat scan and bloodwork in July, and see what that tells us.

I am very thankful I was able to find a way, and I do not want you to give up either!

Tomorrow its back to the dr to hear if I'm going to be cleared for the June 7th surgery date. After 7 weeks on steriods my weight isn't anything like I'd like for it to be and watching what i eat is a real struggle as I'm hungry all the time!!