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Frustrated, but still determined...



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While en route to my pre op appointment, just before I get off the exit, I get a call from my surgeon's Nurse telling me we have to delay my surgery by 6 months, and there was no point in coming in.

Not the news I wanted to hear, I said I was almost there. She said, well just come in & talk to the doctor.

I have an auto immune disorder called Wegner's Granulomatosis and receive an infusion of an monoclonal antibody drug called rituximab twice a year, and apperently some doctors believe you should wait 6 months after an infusion to have surgery ---- but that's for knee replacements, not gastric sleeve.

Long story short after talking to the doctor today and him explaining to me what his concerns are (he doesn't want to do anything that may potentially cause leaks in my stomach and an extended hospital stay hooked up to ports to eat via a tube.)

So he's waiting to hear back from my rheumatologist so she and him can get on the same page. The hope is the dosage I get of my infusions is low enough that maybe it will only be a month or two delay.

So no surgery on April 12th for me. In either case I am down 56 lb since I started this journey last October and do not plan on letting this setback get me down.

Any other people in here going through this pre or post surgery and have an auto immune disorder?

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Hey there, congrats on your 56lb weight loss! I don’t have an auto immune disorder, just wanted to let you know I appreciate how determined you are in the face of such setbacks. It really shows how much you want this for yourself. Best of luck with everything!

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Congratulations on the weight loss and I can understand how this can be frustrating. I have lupus and I am in the pre op stage. I do not receive any infusion treatments. I hope that your surgery will only delay you for a month or so.

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I just got a call from my surgeon's Nurse. The issue that postponed my surgery with the autoimmune treatment has been cleared up, I have my original 4/12 surgery date back.

So I will enjoy some chicken wings tonight & tomorrow starts the liquid pre-op diet!

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    • trinzic

      Hi there!  Just wanted to gain some perspective.  Out of anyone here who had the gastric bypass, can you give me info on your journey?  How much weight did you lose in the first month, 3 months, 6 months after surgery?  I'm working on getting my clearances so that I can have surgery in late summer.  My friend, who just had GB, told me "your new life doesn't start the day of your surgery, but right now, so take care of yourself!"  So, I'm trying.  But hearing what others have experienced will give me some perspective and I'm big on that kind of thing. 
      · 1 reply
      1. BabySpoons

        I lost 25 pounds in 3 months before surgery and your friend is right. Putting off losing weight till surgery date just reminded me of all the excuses I made before. I'll wait till Monday to start or after the holidays.

        I'm 8 weeks out from Gastric Bypass and lost another 25. So I'm averaging about 3 pounds a week post-surgery. That's the most I've ever lost consistently over time without regain so I'm happy. Good luck on your journey!

    • BabySpoons

      Lost 3 pounds this week. I'll take it!!!
      · 0 replies
      1. This update has no replies.
    • JenniferLilly36549

      Waiting for surgery date…still undecided sleeve vs. RNY
      · 2 replies
      1. Jodi74

        I had the sleeve 9/13/21 and just had a the sleeve to bypass revision on 5/3/23. My HW:321 (I'm 5' 8" tall)and I went down to 254 while doing my 7 nutrition appts required by my insurance company. So just changing the way I ate, I was able to get those pounds off w/o surgery. I have many Co morbidities mixed hyperlipidemia, diabetes, htn, MI due to covid. I had read and done quite a bit of research so I could choose the best surgery for myself and learned previous to my sleeve that someone as heavy as I was and all the Co morbidities I have, it was better in my situation to have the bypass but, my DR. Kept saying I would have the same results with the sleeve. Every time I would see him and say to him that I felt it would be best to just get the bypass, he just shot me down and said the sleeve would produce the same results! Why he kept asking me which surgery I wanted at each visit just to tell me the sleeve was all I needed still a mystery to me????? Let's just say, my Dr. Was wrong you see, the surgeries are both about the same price, but the sleeve is easier for the surgeon to perform so I think my DR. Just wanted the easier since he would get the same pay no matter what. After sleeve surgery I did go from 254 to 226 BUT that's just because you are healing from surgery and can't eat anyway as soon as I recovered! I was starving non-stop. I went right back up and stayed at 248. Still had to take cholesterol meds, blood pressure meds, diabetes meds etc. I'm now almost 4 weeks post op the bypass and feel great. I'm not starving all the time, went from 248 to 220 and doing great! Not only what you just read about my story, you also hear about a lot of people needing revision after the sleeve due to acid reflex like severe acid reflex all the time. So the bypass surgery is the only way to stop This reflux if you acquire this condition after sleeve surgery. The regain possibility is higher with sleeve than bypass so just think about all these factors before you make your decision. I wish I would have just had the bypass and saved myself from having to have 2 surgeries in under 2 years. The bypass surgery was also less painful for me lol! I don't know if the new surgeon was better or what but, I was home the next day. After the sleeve I had to stay an extra night due to the nausea and vomiting all night and for pain control.

      2. BabySpoons

        After doing the research between the sleeve and bypass, I chose the Gastric bypass for quite a few different reasons. Thankfully my surgeon told me I was a perfect candidate for it after he examined my health history. Oddly enough, his nurse tried talking me into getting the sleeve too. Like your doc said, she thought it was easier and just as good. But I'm not looking for easy. I'm looking for more effective. Just the reflux alone was enough for me to say no thanks.

        Sorry you had to get 2 surgeries and wishing you all the best!

    • BabySpoons

      Who knew Filet Mignon would make me so sick. Leftovers from Mother's Day.  On the upside..next day I started walking outside a little over a mile without stopping or back pain. That's a bit deal for me considering how inactive I've been for years. Woot woot!
      · 0 replies
      1. This update has no replies.
    • BabySpoons

      Five-week follow-up for gastric bypass and now on lifetime food plan. No restrictions.  In all that time I was fortunate to get sick only one time, week 1, on Easter. Chicken broth...go figure.
      · 0 replies
      1. This update has no replies.
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