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Lap-Bnd & Pseudo Tumor Cerebri

I was banded in December for a number of reasons, one being that I have been putting up with PTC for years, managing it with meds. Of course those of us who are overweight typically hear that if you lose the weight, it might go into remission. But like I said, I have many other reasons for wanting to lose the weight. Currently my PTC is being managed with Diamox Sequals (1000 mg morning, 1500 mg night) and Topamox (2x day), I would love to reduce the amount of medication I am on if ever possible.

I was wondering if there are any bandsters out there who have successfully managed their PTC with weight loss? I personally think PTC is something that is not understood, but if my journey can include this perk, it would be great.

Thanks,

eko

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I was banded in December for a number of reasons, one being that I have been putting up with PTC for years, managing it with meds. Of course those of us who are overweight typically hear that if you lose the weight, it might go into remission. But like I said, I have many other reasons for wanting to lose the weight. Currently my PTC is being managed with Diamox Sequals (1000 mg morning, 1500 mg night) and Topamox (2x day), I would love to reduce the amount of medication I am on if ever possible.

I was wondering if there are any bandsters out there who have successfully managed their PTC with weight loss? I personally think PTC is something that is not understood, but if my journey can include this perk, it would be great.

Thanks,

eko

I have PTC disease but I have a vp brain shunt to manage my ptc symptoms. It was great to loose all the weight, sure. But since my shunt was non-programmable it stripped all the Fluid off my brain and caused me to have ANOTHER brain shunt replacement. Well, least now I have a programmable shunt. So the weight loss made a huge difference in my spinal fluid levels. So much so it cost me another brain surgery. So yes, you will need less meds. Count on it as the weight drops off.

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Thanks for the response, sounds like there may be some hope. I see my Neuro-Opthamologist tomorrow, she knows I was recently banded, so I just wanted to be prepared to have a conversation with her on how to monitor this all since I only see her about twice a year.

~eko

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