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vinesqueen's Journal

A blog by vinesqueen in General

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Entries in this blog

freaker/tweaker

I've had three of these episodes now, where I'm a freaker/tweaker for 2-4 hours, but it seems longer.   I just need to know that someone else experiences something similar to this, to know that I'm not alone.   I become frantic, frenetic, like every molicule in my body is vibrating at double what it should be. Can't think, can't make a coherent sentence, can only shake and pace and move and tweak. The first time I was a little euphoric, but the last two times I felt out of control in a ba

no home Dex.. freaker/tweaker....

they wouldn't send me home with a precription for the dex, so I'm still in the "test" phase. I can only hope they got the numbers that I need.   Yesterday I had another one of those frantic freaker/tweeker episodes. Heh, I'm sure I'd be arrested for being intoxicated in public! I ended up walking in a circle in my kitchen for over an hour... When my brain started to work again, I taught my spud boy how to make a drink for me. He's not wild about giving me booze, but alcohol and cortisol "e

Calling Turtles to action, once more into the fray!

When i started this, I thought it would be a trivial matter to get diagnosed, and then treated. Oh, if only it had been that simple.   It's been a real struggle. Doctors who feel that they know best, doctors who won't test because Cushing's is too rare, doctors who won't test because they have a stick firmly wedged up their butt.   It's so hard to read about seeming everyone else's successes, to know that until I get this tumor out of my head I will never have any success losing weight. I

Cushie fun day in Portland

This last Thursday was Cushie fun day for those of us who were down testing, (and Jaimie too!). So that meant Jamie, Monica and me, as well as my non-Cushie friend Traci.   We went and had girlie, girlie manicures and pedicures at a beauty college. What a treat that was... We were originally going to go to one place, but when we got there, we decided to try a different school.   One of the things I do to amuse myself is play "Hump or no Hump" where I try to figure out if someone has

Week at OHSU.. no CSS

I did NOT have the CSS like I thought I was going to, nor have I met Dr. D. There is a possiblilty that I will meet him tomorrow, but I'm not actually holding my breath. I don't know why I didn't have it after Dr. L said last Tuesday, and now I feel somewhat foolish for saying that Iwas going to have one.   I've had a great visit with a couple of Cushies who were in town! One of the husband is a hoot and a half, and My husband and I had a good time geeking out with him at Lunch. But poor cushi

Heading down to OHSU tomorrow--bring it on!

Hi Campers! (hi Crystal!)   Ok, I'm heading back down to OHSU in Portland tomorrow early morning. I have to be there at 8 am, so we have to get a very early start.   I just wanted to give all y'all a quick heads up. I had a mid-line placed on Friday (it was pretty cool learning to draw my own blood) I'll be doing blood draws every 4 hours, I'll be meeting with the neuro-surgeon Tuesday, and I still don't know if I'll be having the CSS Wed or not. Because I hit a High on Thursday, they had

CSS Bound

I met with Dr. L down in OHSU yesterday.   I have enough high UFCs, which DR. L says are the tough ones to get. I just need the high other numbers. I will be going down again for the full round of tests, since my last time there I was on a Low. Instead of going on their schedule, I'll be going on my schedule.   I'm not sure when my next High will hit. I've been on a terrible Low for over two weeks now, or at least I think it's been two weeks, I don't remember going on a good raging High

OHSU, part II

Tomorrow I go see Dr. L at OHSU again. A couple of weeks ago Lynne called me and told me that they want to see me. That I didn’t need to test any more. I guess when they tell you that it’s because they have all the data they need or want.   Part of me is so afraid that he’s calling me down to tell me that there is nothing they can do for me. That I don’t need to test any more because there is nothing wrong, at least nothing wrong that losing weight won’t fix. Oh sure, if only I could lose w

Restless legs

I've had restless legs all my life, so does my mom. I've found that if I eat LOTS of broccoli it seems to help. Unfortunately, not even I can eat 8 servings of broccoli a day/night. I take extra folic acid supplements and that seems to help. My mother read an article in Prevention magazine about 800 years ago and they suggested extra folic acid as a possible treatment/cure. My entire bed gets destroyed when I sleep, On the nights I don't/can't sleep, I'm absolutely astounded that when my

down 5 pounds this week

Ok, I have to laugh, really really hard. I had all the fill removed from my band, because of the nausia I've been fighting, so I don't have the extra protection from over-eating. (the band is purely restrictive) I've been on a rip-roaring High and so I expected to be gaining weight. I also have been drinking Rum and light fruit beverages, becuase I wanna. I've also been eating ice cream and pasta. Yes, that's right, I've been eating pasta this week! Pasta and bread, everyday! :hungry:   I'

crazy gardener lady

Highs and Lows are so personal, and some of us find our Highs and Lows merge into one weird feeling. I'm lately finding Highs and Lows crossing over into each other.   Right now I'm on an insane High. Wednesday I crashed hard and ended up in the ER with "profound weakness." Today I was doing yard work like a crazy woman, like a woman posessed. Moved one of my compost bins, sstarted to pressure wash the back of the house but the Husband took over because I was crying because I'm ... possesed

Mediterranean Diet

Ok, I saw a new local Endocrinologist yesterday, mainly because I needed some local support, someone to locally help me interpret lab results and the like.   I also wanted to see if he could help me come up with an action plan so I don't end up in the ER any more because I crash so Low.   Well, he ordered yet more UFC tests because he didn't believe the other test results :eek: because they are too high, and I don't really "look Cushing's." Cushing's is a biomedical condition. No one say

World Domination!

I'm High again I just mowed the front yard and weeded part of my rock garden and watered the rock garden and cleaned the rust off the 3 different types of hoes and cleaned the rust off the spade and the fork and cleaned the fern and mulched two flower beds and watered the lilacs... and two days ago a trip up from the basement needed a rest in-between all last week I was weak and tired, could hardly do anything but sleep I still don't feel "strong" like

A memorial weekend

Well, this weekend I spent with my mother-in-law, while she took care of some things for her best friend who recently died after a protracted illness. Every year, my MIL and her friend went to this charity high-tea out in Kelso, WA. The two charities support families in need, one is a family homless shelter and the other provides new school supplies to kids in need.   The weather was lovely, but since we are having one of the dryest summers on record (the next dry one was in 1960) It's been a

calories in/out debate

I know that lots of people are convinced that weight loss is about calories in/out and I know that that holds true for the majority of people. But I have to wonder about us Cushies. I don't think that it is a matter that we have a really slow metabolism.   But the thing is, it doesn't matter how much I eat or don't eat. The calorie in/out would hold true if I gained massive amounts of weight on 1200-1500, when I couldn't lose on 1200, 1000, 800 or less than 700 calories. (I did gain 10 pounds

AI part II

Well, I feel like I've been put through the wringer.   For a couple of weeks I was on a heck of a High. Or at least it feels that way. Sunday I was raging around for no good reason, felt like a bear someone was poking with a sharp stick. I've learned that a crash soon follows these rages, but crap! Monday I couldn't sleep and got up really early on Tuesday but felt really tired in the afternoon. I took a nap, and new a crash was eminent.   Oh man, but I sure wasn't expecting the cras

Boozin' boozin, just you and I!

Oh! We all are bloody-well boozin! (chorus from my favorite Victorian Drinking song.)   One of my weird personal observations is that when I'm in a High I also want alcholic beverages. I mean, I almost crave them.   I'm not now, nor have I ever been an alcholic, but I'm certianly predisposed to being one. My Greatgrandfather was, my grandfather, my dad and 3 out of my 4 sibs are alcholics. Because I've always know of my family history, and the possiblilty of being predisposed, I've alw

ramblin' ramblin' rambin'

Nothing special planned for the weekend. I was going to spend some quality time with WoW, World of Warcraft, if everything co-operates. Hope to get a movie in on Sunday afternoon.   I spent about and hour this afternoon trimming bushes and waging war against the blackberries. Oh the Blackberries! Nothing says "abandond property" like blackberries! Sure the English Ivy will take over almost as fast, but some how it looks genteel as opposed to abandonded and unloved. But I topped off the

Ah-hah, mystery explained

Q: I'm just wondering if we know why we don't lose weight. Why we can't lose weight? As you know, I spent a month at less than 700 calories a day, an managed an impressive 1.5 pounds lost. Which I promply gained when I went to 1000 calories a day. Can someone point me to some links? (and also hopefully break it down so I can understand it when I'm in a brain fog.)   Is it true that excersize increases cortisol levels or production?   This is the information I got from my Cushing's board ht

Holy meth-addict Batman!

I got my resutls from Chris yesterday, before I became a raving lunatic.   7/21 299 7/22 292 7/23 171 7/25 61.2   So, I'm not surprised that I felt so horrible when I dropped. I had a drop of 230 in a matter of days. I have no doubt that I dropped further than that.   I am still working out when I'm High. I thought I had figured this out perfectly, but as it turns out, I apperently get really 'roid ragy *just* after I peaked.   Previously I've been testing just one day, when

no help for the wicked 7-29-6

Wow, so much has changed since I originally started the thread "no help for the wicked." It was 3 months before I was banded, and I was really struggling with my asthma. I mean, really struggling. Death looked like a real possibility.   I really thought that by now I would have lost if not all my excess weight, I would have lost a big whack of it. I was sure that I would be a size 16 by now, not still 22/24. But that is not in the cards for me. I still struggle with this.   But I suppos

performance enhancing drugs...

It seems like the only sports stories I hear about are the scandals involving professional athletes and steroids and/or performance enhancing drugs. It got me thinking. How can I personally relate these stories with my life?   Imagine if you will, that I am a world famous athlete. I’m one of the world’s top baseball players. Never mind that in reality I’m recently 44, 5’4” with frizzy hair and I’m shaped like a baseball… Why, even my face is shaped like a baseball… Anyway, someone gets

Dr. Bruce Banner... Cushing's patient?

Okay, we all know that Dr. Bruce Banner got dosed with too much Gamma Radiation, which turns him into The Increadible Hulk.   So...   I'm thinking that it was his Pit that got espeically zapped. His ACTH has to be affected, since he turns green. (I'm not sure where the ACTH is produced, so I could be wrong.)   "You wouldn't like me when I"m angry" pretty much sums me up when I'm High...   So is he cyclical with *really* short cycles, or full blown Cushing's?   I edited this becau

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