Fibromyalgia and WLS Awareness

As May gets under way, I realize it is a month of nurturing [Mother’s day], appreciation [National Police Memorial Week], and advocacy [international Fibromyalgia/Myalgic Encephalomyelitis/ Gulf War Syndrome/ Multiple Chemical Sensitivity Syndrome Awareness Day].

My Fibromyalgia has been flaring big time but I've been busy building awareness of the special needs of people with Fibromyalgia who have had weight loss surgery.

For one, we cannot take out pain medication the way we did pre-op.

I testified at the FDA Public Meeting on Patient Focused Fibromyalgia Drug Development and spoke about my experiences as a post-op patient. After the meeting I posted all the questions which the FDA needs community responses online [Click here for questions].

If you are a WLS patient with Fibromyalgia, please take a moment, click on the link above and copy and paste these questions to a word document, answer them and then go to http://www.regulations.gov/#!documentDetail;D=FDA-2013-N-1041-0004 and paste your answers as comments onto the FDA docket. The comment now button is in the upper right corner of the FDA’s page.

The comment period closes on May 26, 2014. The FDA really needs to know that there is a subgroup of people with Fibromyalgia who need their medication in chewable, dissolvable or liquid forms.