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As May gets under way, I realize it is a month of nurturing [Mother’s day], appreciation [National Police Memorial Week], and advocacy [international Fibromyalgia/Myalgic Encephalomyelitis/ Gulf War Syndrome/ Multiple Chemical Sensitivity Syndrome Awareness Day].

My Fibromyalgia has been flaring big time but I've been busy building awareness of the special needs of people with Fibromyalgia who have had weight loss surgery.

For one, we cannot take out pain medication the way we did pre-op.

I testified at the FDA Public Meeting on Patient Focused Fibromyalgia Drug Development and spoke about my experiences as a post-op patient. After the meeting I posted all the questions which the FDA needs community responses online [Click here for questions].

If you are a WLS patient with Fibromyalgia, please take a moment, click on the link above and copy and paste these questions to a word document, answer them and then go to http://www.regulations.gov/#!documentDetail;D=FDA-2013-N-1041-0004 and paste your answers as comments onto the FDA docket. The comment now button is in the upper right corner of the FDA’s page.

The comment period closes on May 26, 2014. The FDA really needs to know that there is a subgroup of people with Fibromyalgia who need their medication in chewable, dissolvable or liquid forms.

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    • ChunkCat

      I have no clue where to upload this, so I'll put it here. This is pre-op vs the morning of my 6 month appointment! In office I weight 232, that's 88 lbs down since my highest weight, 75 lbs since my surgery weight! I can't believe this jacket fit... I am smaller now than the last time I was this size which the surgeon found really amusing. He's happy with where I am in my weight loss and estimates I'll be around 200 lbs by my 1 year anniversary! My lowest weight as an adult is 195, so that's pretty damn exciting to think I'll be near that at a year. Everything from there will be unknown territory!!

      · 3 replies
      1. AmberFL

        You look amazing!!! 😻 you have been killing it!

      2. NickelChip

        Congratulations! You're making excellent progress and looking amazing!

      3. BabySpoons

        So proud of you Cat. Getting into those smaller size clothes is half the fun isn't it?. Keep up the good work!!!!

    • BeanitoDiego

      I changed my profile image to a molecule of protein. Why? Because I am certain that it saved my life.
      · 1 reply
      1. BabySpoons

        That's brilliant! You've done amazing!! I should probably think about changing my profile picture at some point. Mine is the doll from Squid Games. Ironically the whole premise of the show is about dodging death. We've both done that...

    • eclarke

      Two years out. Lost 120 , regained 5 lbs. Recently has a bout of Norovirus, lost 7 pounds in two days. Now my stomach feels like it did right after my surgery. Sore, sensitive to even water.  Anyone out there have a similar experience?
      · 0 replies
      1. This update has no replies.
    • Eve411

      April Surgery
      Am I the only struggling to get weight down. I started with weight of 297 and now im 280 but seem to not lose more weight. My nutrtionist told me not to worry about the pounds because I might still be losing inches. However, I do not really see much of a difference is this happen to any of you, if so any tips?
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      · 0 replies
      1. This update has no replies.
    • Clueless_girl

      Well recovering from gallbladder removal was a lot like recovering from the modified duodenal switch surgery, twice in 4 months yay 🥳😭. I'm having to battle cravings for everything i shouldn't have, on top of trying to figure out what happens after i eat something. Sigh, let me fast forward a couple of months when everyday isn't a constant battle and i can function like a normal person again! 😞
      · 1 reply
      1. kezbeth

        I may have to have gall bladder surgery during my weight loss surgery. Not thrilled about it either but do not want 2 recovery times. Just want it over with.

        Thanks for your post. I may need to rethink my decision... :(

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