mavoo
Pre Op
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mavoo reacted to 8yearVETandPacosmom in As much as I hope nobody has dealt with a similar situation, has anyone has the duodenal bypass (2018) after multiple surgeries & interventions, get it revised to Roux-en-y bypass?eally hoping to find someone whose had or knows someone whose had Duodenal switch revised to rbyn bypass and ended up okay and healthy!
I had the Duodenal Switch and gallbladder removed in Nov 2018 with UNC Bariatrics. They have done every surgery since. I've had six total surgeries and a bunch of procedures. In 2022 we lengthen my common channel from 150cc to 450-500cc and fixed a blind loop in my small intestine. Don't know what happened but he said the lengthening did not help like we thought because for some reason I was still unable to absorb orally. I did everything right, worked with the dietitian team through out the entire process, have maintained therapy at least once or if not twice a week for coping skills espically with how everything has ended. I took my vitamins religiously until end of 2023 for financial reasons and I was under the imprison the surgery would allow me to absorb and updated my surgeon about it after 8 months, he found me access to affordable vitamins and we worked on fixing that.
June 2nd 2025 I started non stop vomiting at work after a sip of water. It I kept thinking it was a food borne illness and finally my boyfriend said its enough we are going to the dr asap. Walked in, filled him in on the situation and had my boyfriend talk because throughout the entire process I always downplayed things and my focus was always hey fix this and update the paperwork so i can return to work. He did not know I was struggling daily with vomiting, nauseous and struggling with any kind of oral intake and when I did reach out and had appointments I downloaded the impact it had because I was years into it, I learned manage my life around it and I was able to physically push through it. This time was different.
I stayed in the hospital I believe 1 week 1 day, Had a tunnel cvc put in and started TPN. He also performed my 5th surgery Hiatal hernia repair with fundoplasty (laparoscopic, no mesh) (06/18/2025)
His mom came in from New Zealand and his niece was in from Missouri. In a small one bedroom. When i asked him to ask about possibly going to a hotel it started going bad and I immediately fixed the situation because I do truly love his family and did not want the stress of drama.
I returned to work on 7.31 part time and worked four shifts before it started again, zero oral intake because everything would come up. Water immediately.
Doctor admitted me for a possible infection of my central line. Somehow, even though i had zero intake I had ecoli. Then they tested my esophagus and because it found my esophagus was moving in to and fro way when I swallowed (basically instead of letting whatever you swallow to goto your stomach mine has like a anxiety attack freaks out and takes whatever I take, push some to my stomach, but also some back into my mouth or it stays there stuck in the spasm? Whatever it made them want to do a test called the "chicken study", yes thats a real thing lol, and it then showed that what did get to my stomach was able to get through but it was in a u shape and not taking the correct path. Welp then they found out it was because adhesions were wrapped around my stomach twisting it. Due to my history of being malnutritioned, plus all other things nutritionally that goes along with that , how much of an impact ect he came into my hospital for a honest talk.
He said if he didn't do the following after untwisting my stomach he will do it within 6 months. I told him yeah absolutely not, do it now.
conversion from duodenal switch to Roux-en-Y gastric bypass (08/20/2025)
- Laparoscopic gastrostomy tube placement into excluded stomach (08/20/2025)
- Upper GI endoscopy with dilation (08/20/2025)
I had such issues advocating for the aftercare since being discharged after a phone call from one of the NP involved in my history, had a break down and said the issue is I expect to be better in days or weeks it will be months or years and as far as no medical supplies she started telling me how i could buy it and I stopped her mid sentence reminding her I've been out of work with aero income since June. She said use a bowl and a zip block bag lmao. I get her anger and thank god for that conversation. Facts don't change because you have feelings. I am working hard with my therapist to accept this, change my perspective and have the tools and coping mechanics I need to get through this one day.
TPN services started asap as its been established since June. Was hoping to get off of it before this last hospital admission and left with a stronger formula and back up to 10 hours daily. I am a week into the 2 week period were they change the formula/time based off your blood work so positive vibes and prays for me please) and unfortunately now that I do have G-tube/skilled nurse along with home services for physical and occupational therapy set up ( Muscle mass plus maybe 20oz oral intake on my best day) I have gone from just homebound to basically bed bound. I can get up (it's a struggle, painful and immediately I'm tired from just pulling my body weight up to get ready to stand) to use the bathroom, make the protein shakes and change my clothe. Clothes are robes and dresses only. Can't shower because I can't lift my legs, they are heavy.. They swell throughout the day as well. They're just being difficult lol.
My surgeon has twice a week calls/videos with me moving forward, a bunch of tests ordered, he went a bit overboard but its better than doing nothing like before plus everything he is ordering and doing is to keep me from being readmitted because the current goal is to stay out of the hospital.
I would love to connect with someone who has had this specific revision and pray to hear they're recovery process , to help me know what to expect ahead of me. I do have a disability lawyer, I am confident we will win the appeal. I however, do not like the idea of this being a forever thing. I want to work, be apart of my life, go on hikes with my boyfriend and his son, see my family, hang out at plays, etc. but am ok if that doesn't happen I just hope it will. If it was up to me 100 percent it would because I want to get better, its just my body sucks and apparently doesn't lol.
please if you have not had surgery yet, do not be scared by my story. It's so rare and complex, I have an accredited surgeon who is the head of the bariatric team at UNC a great establishment. He has great outcomes more than most surgeons around. I just picked the short straw and had bad luck. Do not base your decision off any of my information please, join your local groups and talk to the vets or post op and see what they say, make sure your surgeon will cover aftercare and take your vitamins like your life depends on it, change your eating habits and exercise habits as well because I'm not being dramatic. Your life will depend on that.
medical summary from hospial say removed dr and contact info.pdf
chronological list of your surgerie.txt
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mavoo reacted to Arabesque in Issues With Protein ShakesSorry no. My issue with the shakes was textural & sweetness. I’d suffer one every morning and then had soup for my other ‘meals’.
How do you go with other protein sources? Bone broth (though I found this too salty), protein water, yoghurt drink (blend plain yoghurt with milk until thin enough to sip), cream soups or consommés?
What do you mean by warm up food? When you say you can eat two tablespoons of this food per day, do you mean as a single meal or across the day?