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Gastroparesis

MrsHutto143

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MrsHutto143    41

MrsHutto143
Posted

I have a few autoimmune diseases as well as gastroparesis. I was told before my surgery that I would get better if I proceeded. Since, I am unable to eat or drink anything without vomiting. I've now learned from one doctor that I should have NEVER had the surgery with my gastroparesis. Anyone else with gastroparesis? How are you able to manage your symptoms?

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TheGirlInThePinkScarf    28

TheGirlInThePinkScarf
Posted

I have a few autoimmune diseases as well as gastroparesis. I was told before my surgery that I would get better if I proceeded. Since, I am unable to eat or drink anything without vomiting. I've now learned from one doctor that I should have NEVER had the surgery with my gastroparesis. Anyone else with gastroparesis? How are you able to manage your symptoms?

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I have Gastroparesis as well and I just had my gastric bypass on 12/12. I did have some nausea for days, but it went away with me sipping more fluids slowly and taking my anti-nausea medication.

I was told that I was only able to get the bypass (which I wanted anyway) instead of the sleeve because of my Gastroparesis. I was told that the sleeve was in no way an option for me. And while there was some initial nausea, the bypass should eventually make my Gastroparesis symptoms go away.

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TheGirlInThePinkScarf    28

TheGirlInThePinkScarf
Posted

How are you doing now? I'm scheduled for surgery at the end of this month. I have been researching trying to find others with gastroparesis and how the surgery affected them. Thanks!

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I'm still having some nausea and I don't know if my occasional vomiting is due to my gastroparesis or not.

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MrsHutto143    41

MrsHutto143
Posted

I'm now 10 weeks out and my vomiting has slowed down tremendously. I went from vomiting a few times a day to now just once every few days. Hope you are doing better now.

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TheGirlInThePinkScarf    28

TheGirlInThePinkScarf
Posted

I'm now 10 weeks out and my vomiting has slowed down tremendously. I went from vomiting a few times a day to now just once every few days. Hope you are doing better now.

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I'm 5 weeks out and I just has a check-up with my surgeon earlier today.

He has me on Reglan for two weeks to see how that works for me.

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TheGirlInThePinkScarf    28

TheGirlInThePinkScarf
Posted

Wow...were you on medication for the gastroparesis before having surgery? This makes me a little nervous.

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No, my GI doctor didn't feel comfortable putting me on it.

Once I changed my diet, I was fine and didn't need the medication anyway.

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natdow13q2    3

natdow13q2
Posted

Hey there...just a follow up. I had my surgery on 1/25. So far so good. I went from having gastroparesis symptoms everyday regardless of what I ate to not having any. I have maybe felt a little nauseous 2 of 3 times but no vomiting. My surgeon prescribed me reglan just in case (I had frothing the first week...yuck) but I have not had to use it. I take 1 pepcid at night every other day to ensure the frothing doesn't come back.

How have you been since our last chat?

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MrsHutto143    41

MrsHutto143
Posted

Hi
As far as me, I have been a little better. I am only vomiting maybe once or twice a week now. I've been eating a lot of nuts lately which ironically has helped. I can still only eat about 2 tsp worth of food regardless of what it is. Unfortunately I'm allergic to Reglan and Erythromycin so other than Domperidone I dont have many rx choices. I have noticed that ginger gum seems to help also. I hope that you continue to recover well.



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natdow13q2    3

natdow13q2
Posted

Wow. I'm so sorry to hear that you are still having challenges. Ginger used to help me alot. Ask about Amitryptilin. It helps for nausea and pain. I use to take 25mg each night. Eventually I was reduced to 15mgs.

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TheGirlInThePinkScarf    28

TheGirlInThePinkScarf
Posted

Hey there...just a follow up. I had my surgery on 1/25. So far so good. I went from having gastroparesis symptoms everyday regardless of what I ate to not having any. I have maybe felt a little nauseous 2 of 3 times but no vomiting. My surgeon prescribed me reglan just in case (I had frothing the first week...yuck) but I have not had to use it. I take 1 pepcid at night every other day to ensure the frothing doesn't come back.

How have you been since our last chat?

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My surgeon's nurse thinks that my vomiting has more to do with my Constipation and lack of bowel movements.

I think she may be right because I haven't had a BM all week and I got sick three times this week.

I'm working on taking stool softeners every day to help!



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hannah_621    6

hannah_621
Posted

Hi all! Gastroparesis patient.. considering bypass or sleeve. I was wondering if you all had bypass or the sleeve and what you felt was the most challenging? I have idiopathic gastroparesis and I think I'm fairly stable with occasional flares but also can't take reglan either due to side effects. I was told that having surgery could help "cure" my gastroparesis. Any insight is greatly appreciated!!! Thank you!!

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natdow13q2    3

natdow13q2
Posted


My surgeon's nurse thinks that my vomiting has more to do with my Constipation and lack of bowel movements.

I think she may be right because I haven't had a BM all week and I got sick three times this week.

I'm working on taking stool softeners every day to help!




Ask about a medicine called Linzess. It is very expensive though unless your insurance will pay for it. I had a lot of constipation with my gastroparesis so I was prescribed this before surgery. However, it works wonders!!!!!

If you can't get that, you can get Myrilax over the counter. It works pretty good too.

I pray you get relief soon!



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