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Hiv & The Sleeve Desparate For Answers

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Started by mpositive, Sep 06, 2012 11:30 AM
HIV AIDS
11 replies to this topic
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11 replies to this topic

    mpositive

    Newbie

  • Posts: 3
  • Joined: Sep 2012
  • Gender: Male
  • Surgery: Gastric Sleeve
  • Surgeon: Christine Ren-fielding
  • Current Weight: 486 lbs
  • BMI: 64.1
Posted September 6, 2012 - 11:30 AM

#1
Ok, so I had LapBand surgery in 2006, and it worked well. However, a couple of years later I got infected with the HIV virus. When I started the medication for that I could not longer use the band. It had to be completely loosened. The medications were very large and could not be crushed or disolved.
So, I recently went to see my surgeon after a few terrible years. She said I should consider the Vertical Sleeve.

I am looking to find folks who have done this surgery and also have HIV. Please...if you are out there, I desparately need your help.
I am a 6-1 486lb man.....it's do or die for me now.
THanks :)


    jusstice

    Expert Member

  • Posts: 132
  • Joined: Jun 2012
  • Gender: Female
  • Location: NJ
  • Surgery: LAP-BAND
  • Surgeon: Marc Bessler
  • Surgery Date: Oct 2012
  • Starting Weight: 273 lbs
  • Weight Lost: 103 lbs
  • Current Weight: 170 lbs
  • Goal Weight: 150 lbs
  • BMI: 33.2
Posted September 6, 2012 - 2:13 PM

#2
I have no answers for you, but just wanted to say that I hope it all works out for you.


    NDN_RN

    Bariatric Evangelist

  • Posts: 848
  • Joined: Jul 2012
  • Gender: Female
  • Location: CT
  • Surgery: LAP-BAND
  • Surgeon: Craig Floch
  • Surgery Date: Oct 2012
  • Starting Weight: 235 lbs
  • Weight Lost: 63 lbs
  • Current Weight: 172 lbs
  • Goal Weight: 150 lbs
  • BMI: 26.9
  • My Blogs
Posted September 6, 2012 - 2:42 PM

#3
HIV should not be a deterrant to any surgery, if a surgeon refuses that would be unconscionable. As far as the meds, there must be liquid formulations to your antiretrovirals, or some sort of alternative. You should speak to your ID doc first about formulations for your meds post sleev, and then find a surgeon to do it. good luck!

Posted Image


    Sleeved&Hopeful

    Aspiring Evangelist

  • Posts: 504
  • Joined: Dec 2011
  • Gender: Female
  • Location: TX
  • Surgery: Gastric Sleeve
  • Surgeon: Mario Almanza-reyes
  • Surgery Date: Feb 2012
  • My Blogs
Posted September 7, 2012 - 11:48 AM

#4
If your surgeon is recommending the sleeve-I would get it. You should be able to have a healthy and happy life with HIV and getting the sleeve can help with that. I am able to take some pretty big pills if I need to with the sleeve although I think the first month or so it might be a little difficult but I am sure you can do it. I hope someone with experience in this situation will respond.


    mpositive

    Newbie

  • Posts: 3
  • Joined: Sep 2012
  • Gender: Male
  • Surgery: Gastric Sleeve
  • Surgeon: Christine Ren-fielding
  • Current Weight: 486 lbs
  • BMI: 64.1
Posted September 10, 2012 - 4:47 AM

#5
Thanks for all your responses and support. I am working on trying to convince UHC to approve it. I have an Exclusion but am hoping to get it .... at 64 BMI I am at my last hope.


    debs1228

    Advanced Member

  • Posts: 33
  • Joined: Oct 2012
  • Surgery: Gastric Sleeve
Posted October 18, 2012 - 11:59 AM

#6
There are many people out there if u research that have hiv and gotten the sleeve, in this modern day and age and as a trained pharmacist i see no reason why you should be excluded from surgery as long as your constant on your medication and your tcells look great then why not?


    SLEEVEDNBEAUTIFUL

    Guru in Training

  • Posts: 263
  • Joined: Jul 2012
  • Gender: Female
  • Location: MISSISSIPPI
  • Surgery: LAP-BAND
  • Surgeon: Erin Cummins
  • Surgery Date: Sep 2012
  • Starting Weight: 330 lbs
  • Weight Lost: 81 lbs
  • Current Weight: 249 lbs
  • Goal Weight: 220 lbs
  • BMI: 36.8
Posted October 18, 2012 - 12:06 PM

#7

Ok, so I had LapBand surgery in 2006, and it worked well. However, a couple of years later I got infected with the HIV virus. When I started the medication for that I could not longer use the band. It had to be completely loosened. The medications were very large and could not be crushed or disolved.
So, I recently went to see my surgeon after a few terrible years. She said I should consider the Vertical Sleeve.

I am looking to find folks who have done this surgery and also have HIV. Please...if you are out there, I desparately need your help.
I am a 6-1 486lb man.....it's do or die for me now.
THanks :)



First let me say a big hello to you. Sleeve should not be a contraindication to HIV. Check with your doctor and pharmacist about using a liquid form of anti vials. Why are you concerned with the two. I work in health care and EVERYDAY surgeries are performed on HIV patients. As you said tat this is it so you need to put your boots on get to researching. Talk to anyone you think can help. I will be waiting on you on the losers bench.


    mpositive

    Newbie

  • Posts: 3
  • Joined: Sep 2012
  • Gender: Male
  • Surgery: Gastric Sleeve
  • Surgeon: Christine Ren-fielding
  • Current Weight: 486 lbs
  • BMI: 64.1
Posted December 17, 2012 - 3:49 PM

#8
Well, I still have not found many folks with the exact same situation as myself, however, I am wondering if any of you were taking pills, uncrushable pills, immediately after the surgery? How did that go for you?
It looks like I will need to take my pills regardless and it remains a concern of mine for the first 2-4 weeks post op.


    kyllfalcon

    Aspiring Evangelist

  • Posts: 591
  • Joined: Sep 2011
  • Gender: Female
  • Location: KY
  • Surgery: Gastric Sleeve
  • Surgeon: G. Weiss
  • Surgery Date: Mar 2012
  • Starting Weight: 251 lbs
  • Weight Lost: 86 lbs
  • Current Weight: 165 lbs
  • Goal Weight: 165 lbs
  • BMI: 25.8
Posted December 17, 2012 - 4:58 PM

#9
They gave me great big ol' pills right away at the hospital, and that scared the heck out of me. But they went right down.


    doxieville

    Bariatric Master

  • Posts: 1,436
  • Joined: Aug 2012
  • Gender: Female
  • Location: TEXAS
  • Surgery: Gastric Sleeve
  • Surgeon: Frank Duperier
  • Surgery Date: Aug 2012
  • Starting Weight: 253 lbs
  • Weight Lost: 55 lbs
  • Current Weight: 198 lbs
  • Goal Weight: 140 lbs
  • BMI: 32.9
Posted December 17, 2012 - 6:05 PM

#10
Welcome! I really hope that you do have this life changing surgery. It's not a walk in the park, but it will change your life.

I have a whacked immune system and was so worried about this surgery. I found a compassionate surgeon and medical team who helped me each step of the way. 12 hours after the surgery I was taking my pills. My tummy was fine! I also have to give myself injections for my immune system (Enbrel) and I am happy to report that I am so much healthier now at only 4 months post-op that we are looking into diff options for me instead of Enbrel, which suppresses the immune system.

I know this isn't the same as your situation, but the moral to my story is GO FOR IT!!! Just find a really capable surgeon. Good luck and I hope we hear good reports from you.




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